Standing Steadfastly - Part 1

The last few weeks I have been pondering what it means to remain steadfast under trial.

In 1 Corinthians 10:13, it says "No temptation has overtaken you except such as is common to man; but God is faithful, who will not allow you to be tempted beyond what you are able, but with the temptation will also make the way of escape, that you may be able to stand up under it."  What a comfort it is to read this verse and to be reminded that God is faithful!  And because He always has been and always will be faithful, I can trust that He will be faithful to me. Right now.  In this trial.  

In His faithfulness, He has promised that He has not and never will give me more than He will also give me His abundant grace to handle.  I readily confess that I have way more than I can handle in my own strength right now.  But, can also attest to the fact that to this point, God has been faithful to never allow me to be tempted beyond what he has also given me the grace to be able to do.

What I find most beautiful about this verse, though, is God's promise that with the temptation, he will also provide the way of escape that I may be able to stand up under it.  Trials weigh us down.  Having a child with special needs is a weight that I carry each day.  It is easy to lose heart, to fear the future, to be filled with guilt when I feel like I am not doing enough.  This weight affects not just my own heart.  It also affects my relationships with others - my husband, my children, and my friends.

But in this verse I am reminded that God never sends a trial without also sending a way of escape.  This does not mean that God has provided me with an earthly escape.  God has given us no promise of physical healing for Wesley.  God does not promise that things will get easier with time.  What He does promise is that He will give me Himself.  When I call out to the Lord in the midst of my trials, He will hear my cry and will answer me.  He will help me and will give me rest.  He will lift me up and cause me to stand even in the midst of the trials that He has called me to walk through.

God Himself is my way of escape, and when I call out to Him and take advantage of the means of escape that He has provided for me, then He lifts me up and causes me to stand up under the trial rather than being weighed down by it.  When I take His yoke, I find that His yoke is easy and His burden is light (Matthew 11:28-30).

Click here to read Part 2.

Christmas Day

This Christmas was a special day for us.  For the first time, we stayed home for Christmas and enjoyed it as a family.  The boys loved the extra attention, and Mike and I were grateful for a laid back and relaxing day.

First the boys opened their stockings.

Wesley LOVED watching his wind-up toy jump across the floor.

Zach was a delight as we opened presents.  He excitedly asked us to read the label on each present and then handed it to the recipient.  It was so much fun to watch his joy as he handed others their presents.  He was full of generosity and was so happy for us as we opened our gifts.  (Of course he also loved the fact that he had the privilege of opening all of Wesley's presents as Wesley was completely uninterested in the unwrapping process.)  Zach was especially excited as we each opened the presents he had picked out for us.

Zach insisted on giving Mike a five pack of Hot Wheels Ferraris. He just knew that was EXACTLY what Daddy wanted!

Zach couldn't wait for me to open the scarf he picked out for me!

Meanwhile, Wesley was content to start  working on stacking his new set of stacking cups.

We did persuade Wesley to open one of his presents though!

After breakfast, Zach and I decorated gingerbread men.

We then enjoyed a delicious Christmas lunch together and had a wonderful time playing together as a family.  It was nice to have a day with no therapy, no doctor's appointments, and nowhere to go.  We were free to enjoy a spectacular day of family time with no interruptions!

Phoebe

I have struggled for a month now, wanting to share the burden that has been weighing on my heart but not knowing what to say or how to say it.  Several months ago, I chanced upon Reece's Rainbow, an organization that facilitates the adoption of children with special needs - most of them children with Down syndrome. What I read there opened my eyes to the horrors of what it means for a child to have Down syndrome in Eastern Europe.  These children are considered unacceptable and are put into orphanages at birth.  If they are not adopted by the time they are five, they are moved to mental institutions where they live out the rest of their lives.  From the moment they are born, their sentence has been written - a life of abandonment, neglect, grief, and misery that the rest of us could never even imagine.  (You can see an NBC video clip on Serbian mental institutions here.)

As I looked through the hundreds of pictures listed on Reece's Rainbow, one particular little girl jumped out at me.  This little girl has tugged at my heart until it has broken for her.  You see, when I look into the eyes of this precious little girl, I see my son Wesley. They have the same wispy blonde hair, red nose and cheeks, and open mouth expressions.  And they were both born in April of 2009.  The difference is that Phoebe was unwanted and put away forever, just because she has Down syndrome.

It rips my heart out to think that no one would want a little girl so very much like my son.  And Phoebe is by no means the only one. There are countless children just like her waiting in orphanages for God to lay it on the hearts of a family to come and rescue them and adopt them into their own families.

This Christmas, we can give them the gift of a new life. International adoptions cost in the neighborhood of $25,000, so any donation to these children lowers the cost of their adoption and increases their chances of finding their forever family.  As my friend Rochelle said so well, "God calls each of us to support orphans, and Reece's Rainbow is a great Christian organization to accomplish that mission."

So what are we waiting for?  Let's skip that extra dinner out and give a far greater gift!

In Awe of Christmas

I will never truly grasp what it meant for God to send His only Son into the world to be born as a baby for the single purpose of growing up and being rejected by the world He came to save.  How God's heart must have broken as He watched His Son be mistreated, mocked, beaten, and eventually killed.  And to think that He did this for us.  For me.  For Wesley.  What must God have felt when no one in all of Bethlehem would offer a place for His only Son to be born?  His Son was rejected even at His birth.  Then, once Jesus was grown, God permitted the people that He created to mock His Son - to cruelly taunt Him, speak hateful words to Him, spit in His face, whip Him, and brutally murder Him.

As a mother, it is hard to think about the future, when inevitably Wesley will be mistreated.  He will be mocked.  Others will reject him.  If I had the choice, I would never choose this road for my son to walk.  I wish that I could protect him from the world.  I wish that I could always cover his ears when children say, "Mommy, what's wrong with him?" and shield him from cruel laughter at his unusual behavior.  I wish that he would never be rejected by his peers.  My wish that I could protect my son leaves me in awe that God could have protected His Son but chose not to.

 Instead, God chose for His Son to endure great suffering and mistreatment.  And He chose this because of His great love for us.  Oh how unfathomable and amazing God's love for us is that He would allow His Son to endure such things.

Thank you God for sending Your Son to be born and to be rejected so that we might be saved.

Grace

My Dearest Gracie,

It has been five years now, and I still miss you so much.  You will always be my first child, my first daughter, and there is a special place in my heart just for you.  I will never forget the day we found out your little heart had stopped beating.  Seeing the back-up of fluid into your heart and hearing the doctor explain what happened was the most heartbreaking news your Daddy and I have ever received.

I have never heard your Daddy weep as he wept for you.  You see, we loved you so much and were looking forward to meeting you in just a few short months.  But God had other plans - better plans.  He brought you home to be with Him.  Now when I think of you, I picture you at the feet of Jesus, your Savior, worshiping and praising Him.  Daddy and I long for the day when we will join you and see Jesus with our own eyes.  Our biggest prayer for our children is that they will trust in Jesus as their Savior and spend eternity with Him.  So while we miss you here on earth, we are filled with joy that you are already in the presence of Jesus.  And, one day we will join you and we will all spend eternity together worshiping our Savior.

One of my favorite songs is called "It Is Not Death To Die". Whenever I hear it, I think of you Grace, and I weep.  My tears are no longer tears of mourning and grief.  Now, my tears are a mixture of sadness and joy.  I still selfishly wish that you were here on earth with us, but I also rejoice that in your death you did not die.  Instead you are living life as we on earth can only long for and feebly imagine.

I love you Gracie, and I will see you soon!

Love,
Mama

It Is Not Death To Die
It is not death to die
To leave this weary road
And join the saints who dwell on high
Who've found their home with God
It is not death to close
The eyes long dimmed by tears
And wake in joy before your throne
Delivered from our fears

O Jesus, conquering the grave
Your precious blood has power to save
Those who trust in You
Will in Your mercy find
That it is not death to die

It is not death to fling
Aside this earthly dust
And rise with strong and noble wing
To live among the just
It is not death to hear
The key unlock the door
That sets us free from mortal years
To praise You evermore

O Jesus, conquering the grave

Your precious blood has power to save

Those who trust in You

Will in Your mercy find

That it is not death to die

The Things I Can't Do Anything About

I will never forget the women's retreat I attended soon after miscarrying our first child and watching all my friends continue in their pregnancies and then give birth to their children.  I heard a message by Carolyn Mahaney at that retreat that changed my life. At the time it seemed clear that the Lord put me there to hear that message to prepare me for the difficult months ahead. Now as I look back though, I see that God's perfect plan was so much greater than I realized at the time.  God was using that message to prepare me for the rest of my life.

At the retreat, Carolyn gave a message from John 21:15-22 called "What To Do About The Things We Can't Do Anything About".  In it, she talked about how Jesus told Peter what kind of death he was going to die.  Then, when Peter asked about John, Jesus said, "What is that to you?  You follow me."

Jesus was letting Peter know that there would be things that would happen in his life that he would not want to happen but that he wouldn't be able to do anything about.  The same is true for us - things happen in our lives that we didn't choose and that we don't want and that we can't change.  But, we know that God has assigned these unwanted experiences in our lives and that they have been assigned by Him in order to glorify God.

When we are tempted to sinfully compare our lives with others in those times, Jesus' answer to us is the same - stop looking at others and look to Jesus, the one who can give us grace in full measure. Sinful comparison destroys our peace and distorts our view of a wise and loving God.  But if we keep our eyes on the Lord and follow Him, we will fulfill the purpose for which these trials were assigned to us, which is to glorify Him.

We should rejoice when we join in the sufferings of Christ, that we might be filled with joy when His glory is revealed.

So, while it is still hard sometimes to look around and see others living lives that in my eyes seem to have everything while my life seems full of hardship, I am grateful that Jesus' words to Peter apply to me as well. Jesus knows that I do not need His sympathy while I wallow in self-pity.  I need a command, because the one thing I need to be able to walk through this is to follow Him.  And when I am following Him, then I will be able to see His abundant mercy and grace that have been poured out on me.  Once I have seen my loving and faithful Savior, then I will be able to rejoice when I join in His sufferings, that I might be filled with joy when His glory is revealed.

Signing, Stacking and Speaking

We've had a big week over here!  About a week ago Wesley started signing "more" with only verbal prompting from us.  Then yesterday morning as I pulled out a box of graham crackers for breakfast, I looked over and saw Wesley signing "more" with a HUGE smile on his face.  I was so proud of him that I thought I just might burst with joy!  We've been working on signs for so long, and to see him finally figure out that he can initiate signing to communicate with us that he wants something is so exciting!  Please continue to pray that Wesley will pick up new signs and begin to use them too!

Wesley has also figured out how to nestle his stacking cups.  These cups have been one of his favorite toys for months now.  He will sit for long periods of time and work on putting the cups together, patiently pulling cups back out if they don't fit and trying again.  His persistence amazes me.  And now it has paid off!  Check out this video of him stacking his cups together:



Wesley also loves to play with his stacking rings. (Are you catching a pattern here?)  As we were taking a video of him the other day, we were amazed as we heard him say "in" while putting a ring on.  We have been working on "in", "on" and "open" with his therapists for months, and usually after we have said a word repeatedly he will eventually try to imitate it.  But before this, we had never heard him say a word other than "dada" without prompting.  And to show that he really did know what he was saying, Wesley has continued to say "in" when putting toys in or on something.  Way to go Wesley!



We love you Wesley, and we are so proud of you!