Wednesday, May 4, 2011

Wesley's Birthday Party

In the past I have failed miserably at photographing my children's birthday parties, so this year I asked a dear friend if she would be willing to pick up my camera and take a few pictures for me.  Instead, she used her own fancy camera and documented Wesley's party beautifully. (She and her husband are in the process of saving to adopt a child.  If you are ever looking for a baby gift, check out her etsy store.  All the proceeds go to their adoption fund.)


Wesley and his Daddy


I love this picture - I always think it looks like Wesley is smiling as he sees Jesus


Our dear friends and wonderful birthday party hosts gave Wesley a set of gears.
He didn't let this one go for most of the party.


Gazing at the glow of the candles


Amazed!


Zach does the honors








Family pictures



Happy Birthday Wesley!


Monday, May 2, 2011

Words...Again

It's been a long time since we've heard words from our sweet Wesley.  He used to talk all the time.  By January he had learned six words and proudly used them to communicate his wants and needs.  But then, for reasons we still are unsure of (fluid in his ears? seizures?), he stopped talking.  Completely.

Imagine our surprise and joy when two days ago I asked Wesley if he wanted to help me find Daddy and he jumped up and said "Dada".  And then, he said it again and again and again. Once he realized he could talk, he ran around upstairs saying "Dada" and smiling from ear to ear.  We cheered and cheered for him while he proudly stood in front of us and clapped for himself.  For the past two days now, every time we ask him to say Daddy, he excitedly says it.

Then yesterday Wesley decided to show off his running skills.  He insisted that Daddy run around the circle in the house with him - FOR 20 MINUTES!  That kid must have run at least a mile.  If Daddy stopped running for even a minute, Wesley would run up to him and push him while saying "wa wa" (run, run).  Fifteen minutes into their run, Daddy decided to run backwards. Wesley did NOT approve of this behavior, so Daddy told him that if he wanted Daddy to turn around, he needed to say "turn around".  So, what did Wesley say?  "Ta Awawa!"  To say that we were in shock would be an understatement.  Daddy decided to test him by running backwards again.  Again Wesley expressed his displeasure, Daddy told him to say "turn around", and Wesley said "ta awawa".  Then today at feeding therapy, Wesley's therapist played a turn around game with him, and Wesley said it again for her.

After Wesley's feeding therapy today, Wesley and I stopped by to visit his great-grandparents. As we walked up to their front door, I asked Wesley if he wanted to see Grandma and Grandpa.  With a sparkle of delight in his eye, he said "vama, vapa".  I was sure he was just babbling, so I said, "Can Wesley say Grandma?", to which he replied "vama"!  Then I asked him to say Grandpa, and he said "vapa".  Of course once he saw them he was too excited to show off his new words, but I was floored.

My little boy has started talking.  God has done a work in the mind and mouth of my son and given him the ability to speak!  Of course we still have a long way to go.  His words all sound very similar and are difficult to decipher, and most of the time he requires being verbally cued, but we are leaps and bounds farther along on the road to speaking than we were just three short days ago.

O for a thousand tongues to sing
My great Redeemer's praise,
The glories of my God and King,
The triumphs of His grace!

Hear Him, ye deaf; His praise, ye dumb,
Your loosened tongues employ;
Ye blind, behold your Savior come,
And leap, ye lame, for joy!


Wednesday, April 27, 2011

My Little Trooper


Roaming the halls before the EEG

It won't be too bad, right Dad?

Fast asleep at noon after screaming for an entire hour while the leads were glued to his head


Playing and hanging out

Ready to eat!

Playing some more...

Free at last!

Welcome home my sweet Wesley!  Zach and I missed you while you were away.  Your antics and laughter have been delightful today.  It is quite apparent that you are loving your freedom.


Tuesday, April 26, 2011

Just the Two of Us


The last two days, while Mike and Wesley have been cooped up in a hospital room experiencing the joys of a 48 hour EEG, Zach and I have had a delightful time together.  I have loved spending every waking moment with my big boy.  It has been fun to be reminded of how funny and exuberant he is.  He can fill every moment of every day with conversation without hardly taking time to breathe.

We've started each morning with him climbing into my bed and having me read to him from his devotional book. It's amazing how much you can read and talk about when you're not pressed for time.  Then yesterday we went to the children's museum and then out for lunch.  I loved watching Zach run around and use his imagination.  It was such a joy to let him lead the way and not constantly have to tell him to stay with Mommy.  We had a blast building together with magnetic shapes and playing in the space shuttle.  He even persuaded me to come into the workshop and help him build a car out of wood and nails.  I'm not sure Mike will be very impressed with my construction, but at least Zach didn't notice its poor craftsmanship.  He was just thrilled to talk with me while we were working.


Zach has also grabbed hold of the opportunity to work through his "school books" the past few days.  He finished up his enormous Preschool workbook the other day so Mike went out and bought him a Kindergarten workbook to take it's place.  I don't think I am exaggerating when I say that he has completed at least fifty pages in his workbook in the past two days. He loves to learn, and anything that includes logic of some kind is right up his alley.  Yesterday he was hard at work completing subtraction problems, and today he surprised me with his rhyming skills.  He has so much fun talking through each page with me and learning each new concept.

As today comes to a close, I am looking forward to having Wesley home again tomorrow. But I will very much miss the extra time with my big boy.  As much as Wesley is an enormous blessing and a wonderful little brother, I am much more aware after today of how much of my time he requires.  Zach really does receive the the left over bits and pieces of my day after I have finished caring for his little brother.  I am praying that God will help me to find a way to restructure my days so that Zach and I can have more fun times together - just the two of us.


Friday, April 22, 2011

Ah, Holy Jesus, How Hast Thou Offended

Ah, holy Jesus, how hast Thou offended,
That man to judge Thee hath in hate pretended?
By foes derided, by Thine own rejected,
O most afflicted.

Who was the guilty?  Who brought this upon Thee?
Alas, my treason, Jesus, hath undone Thee.
'Twas I, Lord Jesus, I it was denied Thee!
I crucified Thee.

Lo, the Good Shepherd for the sheep is offered;
The slave hath sinned, and the Son hath suffered;
For man's atonement, while he nothing heedeth,
God intercedeth.

For me, kind Jesus, was Thine incarnation,
Thy mortal sorrow, and Thy life's oblation;
Thy death of anguish and Thy bitter passion,
For my salvation.

Therefore, kind Jesus, since I cannot pay Thee,
I do adore Thee, and will ever pray Thee,
Think on Thy pity and Thy love unswerving,
Not my deserving.


Monday, April 18, 2011

Directed Steps


"A man's heart plans his way, but the Lord directs his steps."  Proverbs 16:9

The last few weeks have not gone according to plan.  At every turn, Mike and I have found new surprises and received bad medical reports.  In our hearts, we had planned out our lives and the lives of our children very differently than what it seems may come to pass.  But we cling to the promise that it is the Lord who is directing our steps.  As it says in Psalm 54:4, the Lord is our helper, and He is the upholder of our lives.  There is no place that we would rather be, and no place that we would rather our children be, than in the Lord's hands, upheld by the same God who created us and sent His Son to save us.

"Have I not commanded you?  Be strong and courageous.  Do not be frightened, and do not be dismayed, for the Lord your God is with you wherever you go."  Joshua 1:9

As we walk through this season of things that truly are frightening, we are grateful for these words from the Lord reminding us that we have no need to fear our frightening circumstances, for the Lord our God is with us.  He will never leave us or forsake us.  He will not forsake our children.  He will be with us wherever we go.  Because of this, we can walk courageously forward and face the future that the Lord has ordained for us.


Wednesday, April 13, 2011

He Will Keep Us At Ease






"If we are haunted by God, nothing else can get in, no cares, no tribulation, no anxieties. We see now why Our Lord so emphasized the sin of worry. How can we dare be so utterly unbelieving when God is round about us? To be haunted by God is to have an effective barricade against all the onslaughts of the enemy.

'His soul shall dwell at ease.' In tribulation, misunderstanding, slander, in the midst of all these things, if our life is hid with Christ in God, He will keep us at ease. We rob ourselves of the marvelous revelation of this abiding companionship of God. “God is our Refuge” — nothing can come through that shelter."

Oswald Chambers, My Utmost For His Highest, June 2 meditation