Digging Up the Root of Bitterness

“Perhaps at other times in my life I wouldn’t have even noticed the offense.  I would have brushed it off, overlooked it, ignored it, maybe even laughed it off.  But not when I’m laid low by sorrow.” - Nancy Guthrie

It started out with hurt feelings when others didn't weep with me when Wesley was born. People seemed to quickly forget to offer help as I struggled to get my boys to literally hundreds of doctor's appointments.  I noticed as those asking how Wesley was doing, how we were doing, slowed to a trickle.  Unlike other babies, who were often scooped out of their mother’s arms and cuddled by others, most people didn't hold Wesley and love on him.  It seemed as though those calling just to say hi or check in on our family became almost non-existant.

“If these offenses don’t reach the level of sin against me, why am I so hurt by them?... When someone who should have been there for us didn’t show up, when someone who should be for us has turned against us, it hurts.  Deeply.  Unspeakably.”  - Nancy Guthrie

It then grew to anger.  I judged those around me harshly.  I assumed that we had been forgotten, that others had chosen not to carry our burdens with us.

As the years passed, I became bitter.  I could barely keep my head above water, and pursuing friendships was not something I was capable of doing.  As others made new friends, I felt more and more isolated, and I held this against them.

“Taking a hard look at my own failures and blindness helped me extend grace to those around me who were as oblivious as I had once been.  I stopped expecting that people around me should get it and instead reminded myself, They haven’t been here.  They can’t know what this is like.  My heart broke as I wondered, How many people have I hurt over the years by being unwilling to enter into their sorrow with them?”  - Nancy Guthrie

Envy crept in.  As I harbored bitterness against those around me, I was also unhappy with the blessings and fortune they enjoyed.

I resented others, bitterness simmering at the whole perceived injustice of it all.

And then, malice showed it's ugly face, bringing with it dreams that envisioned their ruin. Perhaps they would one day get what they deserved.  When trials came their way and everyone forsook them, then I could just give a satisfied chuckle.

These sins took root in my life.  Instead of urgently attacking and putting them to death, I allowed them to eat away at my soul, slowly and painfully killing me.  As a result, they left much carnage in their wake.  I don't trust those around me.  There is dissension.  My envy has torn me apart from dear friends.  My anger has been corrosive to genuine fellowship.  My bitterness has made friendship impossible.

“As we look inside ourselves, we begin to see our own resentment as the real issue in our lives – the sin we are responsible for.  We start to recognize that it’s not what another person has said or done that robs us of our joy but our own grudges that we’ve coddled and kindled.  And we decide to stop throwing logs onto that fire.”  - Nancy Guthrie

So where do I go from here?  How do I start to untangle this pervasive sin that has taken root in my heart?

I am so thankful that I do not fight my sin in my own strength.  For if I did, I would surely lose.  This sin has a tight hold on my life, with roots four years deep.

“How can we forgive when that person doesn’t deserve it and hasn’t even acknowledged what he or she did wrong?  We’re afraid that if we forgive, it’s like saying that what that person said or did doesn’t really matter – that it is excusable or not a big deal.  But forgiveness isn’t minimizing what someone has done.  Real forgiveness is far more costly than that.  It says, “You hurt me deeply, but I’m not going to make you pay.  I will pay.  You don’t owe me anymore – not even an apology.”  Forgiveness is choosing to absorb the pain and pay the debt yourself that you are rightfully owed, asking God to do a work of grace and quench the fiery anger in your heart.”  - Nancy Guthrie

So I start by remembering Jesus.  I remember what he has done for me.  He has paid for my sins, canceling my debt, and making me his holy, spotless, forgiven, and loved child.  I do not deserve this, but yet, it is mine.  God sees the blackness of my heart, but still, He welcomes me as His holy child because my sins have been paid in full.  He blots out my transgressions for His own sake, and He will not remember my sins. (Isaiah 43:25)

I repent.  I choose to turn from the sin which is leading me to death, turning instead to God who gives me life.  I am very aware that these sins will come back to haunt me again and again.  I will judge others again, grow angry at them, and be hurt by them.  I must keep repenting of my sin or envy and bitterness and malice will again enter to destroy my life.  And I cling to the promise in 1 John 1:9, which says "If we confess our sins, he is faithful and just to forgive us our sins and to cleanse us from all unrighteousness."

So I confess my sin, and I ask God to help me not just lock it up in a closet, where it will eventually creep back out and attack me again at a later time, but kill it.  And keep killing it every time it shows its face.

I don't want to indulge hurt feelings.  I don't want to be angry at those around me.  Or bitter. Or envious.

“We stop constructing plans to get revenge and instead nurture thoughts of how we might bless those people.  Instead of being happy when they hurt, we allow ourselves to be sad with them.  We figure out what it would look like to express love in a meaningful way, and then we do it without fanfare.  We refuse to keep dwelling on the injustice of what happened and choose instead to trust God to execute justice, believing that he will settle accounts for us far more justly than we can.  We repent of the pride and superiority that cause us to think to ourselves, or perhaps even say out loud, I would never do that!”  - Nancy Guthrie

From now on, by God's grace, I pray that my love for those around me will be genuine.  I pray that I will abhor what is evil, holding fast to what is good.  I am asking God to help me love others with brotherly affection and seek to show them hospitality.  I want to rejoice with those around me when they rejoice and also weep with them when they weep.  I pray that from here on out, I will live in harmony with others.  I don't want to repay evil for evil (or even perceived evil).  Instead I pray that I will do what is honorable in the sight of all.  So far as it depends on me, I ask that God would help me to live peaceably with all.  (Romans 12:9-21)

* I have borrowed some thoughts from this blog post by Joe Rigney at Desiring God ministries, which the Lord used to convict me and see how these sins were destroying my life.

* Quotes by Nancy Guthrie are from her book, Hearing Jesus Speak into Your Sorrow

Jesus Is Enough

The past few months, I have been slowly making my way through Nancy Guthrie’s book, Hearing Jesus Speak into Your Sorrow.  Nancy and her husband have experienced much sorrow and grief in this life as they have watched two of their children die in the first year of their lives.  In this book, she shares questions she has wrestled with since their deaths and the comfort and hope Jesus offers to us in the midst of our grief.  As I have read though her book, I have often nodded whole-heartedly as I have found what she says to be true in my own life.  I am so grateful for how she has beautifully articulated how Jesus comforts brokenhearted people and offers us life and hope.

Below is an excerpt from her book:

When Jesus says that his grace is sufficient, he’s not talking only about the grace that extends pardon for what we’ve done in the past.  He’s talking about grace that is a present power.  This grace Jesus gives us is the power to go on when we think we can’t make it one more day.  It is the power to believe when doubts and questions are crowding into our conscious thoughts.  Grace gives us what we need to take hold of God’s Word and rest in it amid the voices around us and inside us that tell us God cannot be trusted.

We like to think that the way God can get the most glory is by doing the miracle we’ve put on order.  We’d much rather have Jesus display his power in our lives in the form of healing and wholeness, success and accomplishment, rather than dependence and weakness.  We want escape from weakness, not power in weakness.

I suppose this presents a real test for us.  It forces us to ask ourselves, Do I want to experience and receive more of the grace of Jesus so I can put it on display in my life?  Or do I just want him to give me what I ask for, what I think I need, so I won’t have to hurt so much anymore?  Can I find satisfaction when God does not fix the difficulties in my life but instead gives me the grace to endure them without complaining, without being resentful, without turning my back on him?  Can I move from desperately seeking relief to diligently seeking to glorify God as I treasure him more than my own health or comfort?

Do you think it’s possible to find pleasure in the place of your deepest pain?  It seems incomprehensible, even ridiculous, doesn’t it?  That’s because we don’t really think the grace Jesus has promised us is all that good.  We don’t think it will be enough – not enough to fill our emptiness, not enough to meet our needs.

The truth is, we’re often more interested in getting what God’s got, not getting more of God.  We’ve put in our order for a miracle of healing or relief, and the miracle of his presence seems to us like the consolation prize.

The grace God provides is enough to generate joy in the midst of your great sorrow.  It’s enough to enable you to endure the loneliness and the reminders of loss everywhere you turn.  It’s enough to keep you believing that God is good and that he loves you.

“My grace is enough for you today and for everything you will face in the days to come.  It will be enough – I will be enough – for whatever I allow in your life.”

Consolations

If the Lord had not been my help, my soul would soon have lived in the land of silence.  When I thought, "My foot slips," your steadfast love, O Lord, held me up.  When the cares of my heart are many, your consolations cheer my soul.  Psalm 94:17-19

These were the words that I read this morning, parked in front of an abandoned baseball field, with the audio for the Chronicles of Narnia blaring through the back speakers of the van to entertain my boys for a few minutes.  As boys complained and great battles were fought behind me, I asked the Lord to still my heart, even if only for a moment.

And in that moment, as the past year flashed before my eyes, I saw again that it is only because of the Lord that my soul does not live in the land of silence.  If the Lord had not been my help, I most certainly would have given up.  It is only because of the Lord’s steadfast love holding me up that my foot has not slipped.  Countless times, as I have climbed the rocky terrain, carrying burdens that have weighed me down beyond anything I had thought humanly possible, I have looked ahead at the treacherous path and thought, “This is it.  I am not going to make it this time.”  But the Lord’s steadfast love has upheld me every single time.  Even when I have been faithless and lost heart, the Lord has remained faithful to me.  And yet, as I stand here today, the cares of my heart are still many.  The Lord has kept my foot from slipping and protected my soul time and time again, but I am still walking the same path.  The terrain is still rocky and treacherous. 

In the midst of that not-at-all peaceful moment in the car this morning, the words on the page brought comfort to my soul.  Even though the cares of my heart are many, the Lord’s consolations cheer my soul.  In my weary, burdened state, God comes to me and alleviates my grief and sorrow by comforting me.  He makes it easier for me to endure.  What a beautiful picture.  God consoles me.  My Heavenly Father comforts me.  This is the very reason that I cast my cares on Him – because He cares for me.

As I thought more about this verse, I thought that perhaps this gives us a picture of how we can help one another.  When others are walking through significant trials, there are not always tangible ways to reach out and help.  I know, for myself, when people ask how they can help, I often cannot offer them a specific thing that they can do.

One thing, though, that we can always do for those who are suffering, is be ministers of God’s consolation by walking alongside them and comforting them.  I am often comforted even when others acknowledge that the road I am walking is very hard.  Somehow, knowing that others realize and care makes it easier for me to endure.

Grieving with those who grieve is also a way to show consolation.  It may not immediately cheer someone’s soul, but it is a comfort.  Someone who loves and shows that love by grieving with those who grieve is a welcome companion.

Faithfully reaching out to a friend, letting them know that we care and that they are on our hearts is a consolation.  What a comfort it is to receive a text, email, or phone call from someone who not only thought of you, but took the time and effort to let you know.

Comfort can also come in the form of encouraging those around us with the promise that the Lord is their help and He loves them with a steadfast love.  He is their refuge and their salvation.  As we gently and compassionately offer these words of hope, we are holding out to them the consolations of the Lord.

Offering consolation to those around us who are suffering allows them to see that they are not alone.  That in itself is often a comfort to their souls.  And as we care for them, let us pray that the Lord would use our feeble attempts and turn them into consolations that cheer their souls.

Sensory Processing Disorder

Sensory Processing Disorder.

It is real.  It impacts daily life.  All three of my boys have it.

I have debated writing these words publicly, as I realize that my boys may not want to have this label once they are older.  But the fact of the matter is, this is real life.  This is what we are dealing with right now, and it is what my boys will continue to deal with every day of their lives.  And hiding it does not help.  It will not make anything better.

On the other hand, I want to be sensitive, as one of my children is already aware of differences between him and other boys.  He is afraid to try new things, for fear that others will make fun of him if/when he fails.  Unfortunately, he has reason to fear.  He has learned from experience.  So he stands by as other boys run and play with skills that come naturally to them. Or he compensates by acting up to disguise his inability to keep up with his friends.  And this breaks my heart.

Every day we live with the negative impacts of this disorder.  Every day we face new challenges and discover new hurdles to climb.  Every day I pray that God will help my boys to overcome these great challenges that He, in His sovereignty, has seen fit to give to them.

While each of my boys is impacted by this disorder differently, I see many similarities between all three.

They are all sensory seeking, constantly on the go with a never ending motion and an inability to sit still.

One of my boys seeks sensory input to such an extreme that he is almost constantly seeking visual, vestibular, and oral input.  It is nearly impossible to provide him with enough input through therapy and other activities throughout the day in order to prevent him from self-stimming.

My boys are always seeking proprioceptive input, crashing into objects and people as they seek the deep pressure this provides.

They struggle with motor planning, making fine motor and gross motor skills difficult or even impossible for them to master.  With two of them, I also see struggles with motor planning affecting their speech patterns and feeding skills.

They lack an awareness of where their body is, and along with this comes a lack of coordination.

Containers affect them.  If a food looks different or is presented in a different way, they won't touch it.  In general, they are very sensitive to textures and tastes and as a result have limited diets.

Structure is very important to them.  If anything is out of the ordinary, it is difficult for them to adjust and spontaneously do something different.  I have learned that if we deviate from our daily routine even in the smallest way, it is very important to prep them beforehand on what we will be doing and what my expectations for them will be.

Loud or sudden noises startle one of my boys and send him running in a wild frenzy with his hands over his ears.

One of my boys seems to not notice even extreme heat or cold, his body unaware of the need to either bundle up or get out of the heat.  Another of my boys is bothered by even the slightest change in temperature, his body intolerant of any adjustment it might need to make.

They struggle to control their emotions, going from 0 to 100 in a matter of seconds.  Temper tantrums are a regular occurrence around here, with emotions raging out of control and boys unable to regulate their bodies once something has gone wrong in their environment.  I am often unaware that something is even wrong until someone is screaming.  And then it is a full-time job to help calm one child while trying to prevent the situation from escalating with other boys going into sensory overload from the noise and joining the fray with a meltdown of their own.

Therapy has been a godsend for my boys, and I am so grateful for all of the help their therapists have provided for our family.  We have many techniques, routines, and activities that we incorporate into our daily lives to help our boys as much as possible. And we hope and pray that over time our boys will learn how to individually incorporate these techniques into their own lives to better help them to regulate themselves as they grow older.

My prayer for my boys is that as they grow up, they will be able to fully function as boys and then men in society.  I pray that they will be able to develop and maintain friendships with their peers and interact with others in socially acceptable ways.  I pray that they will be competent in doing normal activities such as riding a bicycle, throwing and catching a ball, and playing sports at a recreational level.  I pray that this disorder will not affect their ability to succeed in school and then later in the work world.  But most of all, I pray that they will grow up to love Jesus.  I pray that in their weakness, they will find Him to be their strength.  I pray that their disorders will cause them to see their need for Jesus and that their dependence on Him will be even greater because of the struggles that they face.  May the very thing that causes them pain and sorrow end up being the tool that God uses to shape them into humble, godly men after His own heart.

I stood a mendicant of God before His royal throne, 
And begged Him for one priceless gift which I could call my own. 
I took the gift from out His hand, but as I would depart I cried, 
"But Lord this is a thorn and it has pierced my heart; 
This is a strange and hurtful gift which Thou has given me." 

He said, "My child, I gift good gifts and gave my best to thee." 
I took it home and though at first the cruel thorn hurt sore, 
As long years passed, I learned at last to love it more and more. 
I learned He never gives a thorn without this added grace, 
He takes the thorn to pin aside the veil which hides His face. 

 Elisabeth Elliott

Baby Steps

What does it look like to be a sensory kid?  For one of my kids, it is all about the container.  If it looks different, or feels different, he won't try it.

This means that we have been unsuccessfully trying to transition him from a bottle to a straw cup for six months now.  Last week, his feeding therapist told me that despite all of the speech issues that can come from a child drinking from a sippy cup, she has given up on transitioning him to a straw any time soon.  Instead she has settled on one particular sippy cup, which we now want him to at least try to drink out of.

With him being a sensory kid, we are thrilled with baby steps.

This is the bottle he currently drinks out of:

This is the cup we want him to drink out of:

So far, no way!  He won't go near it.  In an attempt to make this easier for him, we have mixed around the parts of the interchangeable cups, trying to help him slowly adjust to his new cup.  For a while, he would just sit with his cups, picking them up with a confused expression on his face and asking me over and over again, "milk?", "bottle?".  He would then put them up to his lips, say "mmm", and then put them back down again.

But after a week of hard work, we are very excited to say that he will now tolerate the following modification:

We still have a long way to go, but since we're measuring progress in baby steps around here, we're very proud of our little guy and how brave he was to try his new cup!

Valiant Warriors

This winter was filled with dangerous battles, moments of great valor, and narrow escapes.

Swords clashed, brother fighting brother.

And it was discovered that our youngest son has great skill wielding a sword.

I can only imagine the battles that will ensue once the swords are sent outside for the summer.  Good men will fight valiantly.  Bad men will be conquered.  Mommy will be protected.  And evil will once again be defeated, making the world a safer place.

My Boys and Their Daddy

My boys are so very blessed to have a Daddy who loves them, delights in spending time with them, and faithfully cares for them.  They know that they are never an inconvenience for their Daddy.  Even when they come to him with the most insignificant of problems, he always comforts them, hugs them, and shows them by example that what matters to them, matters to him.

My boys have a Daddy who invests in the details of their lives.  He gets down on the floor and plays with them even when he is exhausted from a long day's work.  He praises them for a job well done on projects they bring home from school.  He wipes away their tears.  He chases them and tickles them, joining in with their laughter.

My boys have a Daddy who cares about their souls.  He faithfully reads to them from God's word, answers their hard questions in a way they can understand, and prays with them. He is diligent in training them up in the way that they should go.

My boys have a Daddy who loves them very much and is determined to always be there for them.  And they know it.  They love him, trust him, and are happiest when they are with him.

I couldn't ask for anything more.

Ah-Choo!

Some days, everything goes perfectly according to plan.

You convince Mommy and Daddy to take you out for lunch.  Then, amazingly, your big brother and little brother both take naps.  So you fool your parents into letting you stay up.

Suddenly, you realize you have Mommy and Daddy all to yourself for the next two hours.  You quickly sucker them into playing a game with you by flashing your sweet smile.

What follows is a hilarious game of sneezing the hat off, which by the way is one of your favorite games.  You and Mommy and Daddy take turns putting on the hat and then nodding your heads while saying, "Ah-ah-ah-ah-choo!"  As the word "choo" is spoken, the hat goes flying off.

Each time, you giggle at the funny joke you are sharing with Mommy and Daddy.  What you don't know is that Mommy and Daddy love playing with you just as much as you love playing with them.

They delight in laughing with you.  Some day, you'll have to pull the wool over their eyes again and play another special nap-time game with them.

Verbal Extravaganza

 Dearest Liam,

It seems that in the time that it took me to blink, you went from a little 11 month old with huge verbal delays to a 16 month old who talks nonstop.  When I look at you, I see God's mercy and kindness, both on you and on our family.  I often have to fight back tears as you run around talking with such excellent articulation.  Your words are beautiful, my son. I never fully appreciated your oldest brother's gift with speech, but with you, I take nothing for granted.  Every new word that you say is a reason to rejoice.  Every two word phrase you speak is a moment for me to pause and thank God.

Your struggles are not over, and I am very aware of how sensory and motor planning issues may affect you for the rest of your life.  But for now, I am rejoicing in how God has used your wonderful therapists to give your little body the kick start it needed.

As I sat down to write, I thought I'd do a quick tally to see how many words you are speaking now.  Needless to say, I was shocked to find that I came up with a list of over 70 words in just a few minutes.  And many of these words are spoken so clearly that even a stranger could understand you.  As well, you started using two word phrases a month ago and regularly surprise me again as you put different words together.

I love sitting down with you to take your shoes off.  You start repeatedly saying "shoe off" until I remove your shoes.  Then, you give me a little grin, grab your socks, and start saying "pull" with such a groan that I must suppress a laugh at your exaggerated effort.

Another thing I love about you is that you enjoy walking around the house pointing out things that are off limits and saying to me with a very serious face, "No! No, no touch!"  Other times, when I'm emptying the dishwasher or something else that you are very interested in, you quickly run over and start touching everything.  Then you seriously look up at me, say "No, no touch!", give me your mischievous grin, and continue touching with a little giggle.  You are going to give me a run for my money as you grow up, little mister.  That much is already apparent.

You also do a great job of reminding yourself "no hit" before hitting me in the face, laughing loudly, and then going back to hit me again.  It seems that you are picking up on some of your big brother's less appropriate behaviors.  (You also love to spin in circles with him while laughing and saying "spin".)  Don't you worry; we are addressing these behaviors!  But the good news is that you will (hopefully) grow out of these things much sooner than he will, as it is obvious that you are doing these things out of imitation and admiration of your big brother rather than as a need for proprioceptive and vestibular input.

Which reminds me, one of my favorite phrases of yours is "Out? Ok!", which you say to me when I come in to get you out of your crib in the morning.  I particularly love this because you have picked it up from your big brother, who regularly asks and then answers his own questions, such as "I want snack!  Yes?  Ok!"  It is such a joy to me to see how closely you watch your big brothers and, in your admiration of them, how much you desire to emulate them.

In fact, when your big brother is napping, I have to be on my toes to catch you before you run over to his door, loudly proclaiming "open door".  I'm still not sure if you are missing him or his toys more, but either way, it is endearing to see how you notice that he is gone and want me to help you find him.

Then this morning you surprised me as I was packing you up to head out for speech/feeding therapy (which you are ever so close to graduating from! You just need to start drinking out of anything other than your bottle, which you are firmly attached to!)  As I told you we were going to see Miss Char, you looked up at me with your little serious face and said "Char. Eat." Yes, little buddy, that's right.  We're going to go see Miss Char and work on your eating skills. Clearly, your speech skills are good to go at this point.

And can I take a moment to be honest with you Liam?  Sometimes, as I listen to you speak with such effortlessness, I feel a twinge of pain in my heart.  It hurts to watch you already begin to surpass your brother verbally.  My heart sometimes feels like it's being tied up in knots as I hear your amazing clarity of speech and then watch your brother struggle so much to say a word.  I am so very proud of you.  And I want you to know that.  I will always be your biggest cheerleader.  But since I'm your brother's biggest cheerleader too, my heart breaks as I am reminded of just how hard this life is for him.  You see, I love him just as much as I love you, and watching your effortless speech is a reminder to me of just how hard everything is and will be for him in this life.  Please be patient with me, my son.  Please forgive the times that I have tears in my eyes as I watch your magnificent accomplishments.

While I am being honest with you, I pray for you, my son, that God will give you a tender but strong heart.  I pray that your heart will be strong enough to withstand the mocking that you will surely receive for associating with your brother.  And I pray that your heart will remain tender toward your big brother for the rest of your life.  May you always be patient with him, coming alongside him and guiding him through this life. It is only a matter of a year or so before you surpass him in every way.  When you do that, please don't leave him in the dust. Take him by the hand and help him.  Be his best friend and his protector.  Show this world what it means to love Jesus in the way that you love your brother.

I love you, my son.  Your laugh is infectious, and your joy permeates everything that you do. You bring sunlight into our home just by being here.  We are so blessed to have you!

Love,
Mama

* Your words at 16 months (at least what I can remember):  open, up, down, close, help, please, monkey, bear, circle, beep, bagel, pizza, milk, coke, more, door, car, shoe, sock, pull, off, no, touch, march, Bob (the tomato), run, Zach, bite, burger, fry, cow, dog, woof woof, pig, block, eat, duck, quack quack, night night, giraffe, pants, shirt, brush, toes, foot, cracker, all done, all gone, nugget, sit, push, spin, hit, medicine, yellow, blue, book, ball, hi, bye, juice, hug, poop, oh no!, oh my!, plate, fork, spoon, sword, baby, waffle, cookie

Four Years of Joy

My dearest Wesley,

Last week we celebrated four years of life, four years that have brought much change to our family and much joy.

This past year has been a big year for you.  You have now completed your first year of school, and we are so very proud of you.  As I look back on the past twelve months, I am amazed at how far you have come.  You now speak in two word phrases all the time, including your constant requests to us this week to "sing Birthday!"  You know all of your capital letters and more than half of your lowercase letters.  You are learning to count to ten, and I often hear you counting to yourself: "one, koo, fee, five, eight, nine, ten!  Yay!  Woohoo!"  You are your own best cheerleader, often praising yourself and cheering yourself on when you are working hard.  In fact, when we've asked you to do something you don't want to do, upon completion of the task, you will often clap for yourself while saying "Yay!"

This year you also learned to jump, walk up the stairs safely, walk down the stairs with supervision, and play much more safely on playgrounds.  Just this week, you climbed up the climbing wall at our park to go down the slide over and over again, determined to master the wall and so very proud of yourself every time you reached the top.  You have made great strides forward with fine motor skills, now drawing circles and crosses along with the vertical and horizontal lines we used to work on.  You do an excellent job of showing us how to draw a cross, first sliding your finger down the paper while saying "down" and then sliding your finger from left to right and saying "across".

We love listening to all the things you say now.  Last year you had about thirty words but still mostly used your picture board and communication device.  Now, you talk all the time. Instead of showing me pictures, I hear things like "eat yogurt" or "play outside" or "help please". As a result, I see so much less frustration in you because of a lack of an ability to communicate.  You tell us when you want to ride in the car, which toys you want to play with, what you want to eat, as well as who you played with at school.  You love to label things, such as "blue car" or "yellow block".  When we ask you yes or no questions, you answer them with ease, not even needing to pause to think about it.  You even tell us when you want to spin things, which is helpful since this is a behavior we are trying to curb.  Every time we drive past any fast food restaurant of any kind, I hear you calling out "eat fries" from the back seat with a hopeful voice.

I have also been encouraged recently with your willingness and ability to work more on diction and intelligibility in your speech.  Because of your struggles with oral motor skills and motor planning in general, speech clarity is difficult for you.  But as you grow older, we are able to work more on these things and are seeing such an improvement.  In fact, your love of letters has been such a help in this area, as we put together letters for you to work on sounding them out to make words.  You are by no means reading, but we are using these early reading tools to help you with diction since you love to learn this way.  We even found a fantastic app for Mommy's iphone to help with this, since using with Mommy's phone is always a draw for you.  In the past few weeks, you're slowly adding some "t"s and "s"s to your words. You now say "t-mummy" for tummy instead of "mummy", "ou-t" instead of "ouk", "s-poom" for spoon instead of "poom", and so on.  You still need that little pause to think about where to place your tongue, but the improvement is significant! We are so very proud of you!

You are such a sweet big brother, often sharing your snacks willingly and helping me to feed Liam while he is in the highchair.  You love to splash with him in the bathtub, and it thrills you to no end when he thinks what you're doing is funny.

And you are learning to play games with your big brother too.  You love to play Hullabaloo and a modified version of a Maisy Mouse matching game with him.  As well, games of chase, duck-duck-goose, and hide-and-go-seek in the dark with flashlights are always filled with much laughter from the two of you.

You have also grown tremendously this year in your ability to sit still and listen and to play independently. You now enjoy sitting in your cube chair and listening to us read you books, often listening to us read story after story.  I also catch you kicking balls around, building lego towers, stacking blocks, and building train tracks on your own these days.  Another thing you often do, which fills my heart with joy, is pull out your Bible story books from the shelf, paging through them, carefully examining the pictures, and babbling away as you are seemingly re-telling the stories you've heard me read so many times.

What brings me the most joy is seeing how very drawn you are to your Bible story books in comparison to any other book.  While you enjoy listening to any story, you will look at your Bible story books for long periods of time, often shocking me with how long your attention span can be for them.  You also suddenly have become interested in praying.  You fold your hands and sit quietly when we pray, saying "Amen" with us when we finish.  And you now repeat words to pray yourself as well.  Earlier this week, I was nearly brought to tears as I watched you earnestly pray to Jesus to help you after one failed blood prick for your annual blood draw.  After praying, you settled down, stopped fighting, and allowed the nurse to draw blood from your other arm.  Then you thanked Jesus for helping you.  Every woman in that room bore witness to how you brought your request to Jesus with the faith of a child and how Jesus answered your prayer, helping you  to sit still and obey even when you didn't want to. What a testament you were to the power of God and of His love for His children.

I love you so much, my son, and you bring such joy to my life.  I pray that this year you will understand even more of who Jesus is and how much He loves you, and that one day you will put your trust in Him as your Savior.  I pray that God will use your life to reflect His lovingkindness to all those around you, as it is evident that He is already doing.

Love,
Mommy

Our Therapist, Our Friend

Several weeks ago we said goodbye to a dear woman who had in many ways become like family to us in the year that we knew her.  She knew and understood the ins and outs of Wesley's strengths and struggles better than most, and she had a true gift in helping him.  With her guidance, Wesley began playing games this year and trying new things that had overwhelmed his sensory system up until now.  Through her instruction, we began implementing structures at home that have helped him to understand boundaries, routines, and rules.  As well, because of her own past, she could relate to Zach as Wesley's brother and was a help to me in encouraging me to pursue specific outlets for him.

When concerns for Liam began showing up, she recognized the red flags and took him under her wing.  She was able to quickly identify the sensory and motor planning areas that he most struggled with and put together a plan to help him, including beginning the same brushing and compression regimen we used to use with Wesley and putting him into a SPIO vest.  And God used her skill and care for our boy to completely change his life.  Within a month, he was a different child.  Now, four months later, the 40% delays in speech, feeding and fine motor skills are all but gone.

When I look back at the past year, I can clearly see how God brought her into our lives for such a time as this.  Our boys are different than they would have been because of her.  And although she has now moved on to new and exciting opportunities, she has given us wonderful tools to continue to help our boys as we move forward.  We will never forget her and the gift that she was to us.

The Love of God Displayed

A few weeks ago, as we faced the prospect of two surgeries, one to replace the tubes in Wesley's ears and one to repair my umbilical hernia, the thought of caring for our boys while also attempting to maintain our daily schedule of therapy and school seemed daunting, if not impossible.  But it was in the midst of this that God displayed His love and care for us.  God provided far and above all that we could have asked for, through ladies in our church who love Him and as a result have a heart to serve those in need around them.  We were so blessed to see firsthand what the love of God looks like as displayed through these dear ladies.

Love is offering (last minute) to leave your house by 5:15 in the morning to care for boys all day while their parents take their brother to the hospital for surgery.

Love is graciously following specific guidelines to bring delicious meals to a family full of picky eaters.

Love is spending a week full of twelve hour days caring for three boys while Mom lies nearby and watches.

Love, especially for a college student, is arriving at our house promptly at 6:30 every morning, ready to serve the moment you walk in the door.

Love is changing explosive diarrhea numerous times with a smile on your face.

Love is being slapped in the face more times in a week than you've been hit in your entire life and responding graciously each time.

Love is leaving your family to fend for themselves and coming over to watch the boys for an hour and clean up the house before Daddy walks in the door from a long day's work.

Love is emptying the dishwasher and cleaning the kitchen when you quickly notice that Mom is too weak even to lift a plate.

Love is joyfully playing with three boys even when you're weary and they have been pulling you in three directions all day long.

Love is playing games over and over and over again with a three-year-old who adores you and won't let you leave his side.

Love is stopping everything you are doing to comfort that same three-year-old who is in tears because he couldn't find you and feared that you were gone.

Love is rushing around to get boys from school to therapy to school to therapy to lunch to naps every day for a week with energy and a cheerful countenance.

Love is selflessly serving those in need, showing them the same love that Jesus has shown to you.

(And, it's possible that as you love this family, you will find that a sweet three-year-old little boy has carved out a little spot for himself in your heart and wrapped you around his little finger. While the family you are serving will never be able to thank you enough for everything you have done, you may just find it to be true that it is more blessed to give than to receive.)

Finding Refuge Through God's Word

This post is part of a series. Click on the following links to read Part 1, Part 2, Part 3, and Part 4.

I want to conclude this series by introducing a woman who has been an example to me of what it looks like to find our refuge in God.

Krista Horning is the author of my favorite book on disability.  As she has walked through life with Apert Syndrome, God's sovereignty and goodness have become a refuge for her soul in the midst of a life she did not expect to live.

I had the opportunity to meet Krista last November at a conference on disability, and God's glorious grace radiates in her life.  This young lady has suffered much in her life.  She has fought hard to believe the promises of God, and she has found refuge in God as she has come to know Him through His Word.

At Desiring God's Disability Conference, she shared her testimony.  I was undone as I listened to her words:

Disability says ugly things to me.
It tells me I am alone.
I am different.
I am worthless.
I am weak.
It tells me my life is hopeless.
Disability lies to me, and sometimes it is easy to listen and believe.
Sometimes I don't want to live with a disability.
Sometimes I don't want to be who God made me to be.

She went on to share how God's word is a refuge to her soul, and what it looks like for her to cling to this refuge.  Then Krista concluded with these words:

For now I live with disability.
Disability still says ugly things to me.
Disability is a part of this broken sin-filled world.  

But God has so many beautiful things to say.
And so I’m filled with hope.
God’s words grow louder and louder in my life.
The glory of His grace and mercy grow stronger and stronger.  

I need to listen to His words.
I want to listen to His words.  

God's words change everything.
God’s beautiful words have changed my life.
And that is how I live with disability.

If you have ten minutes, listen to her testimony and be encouraged.

How Do We Find Refuge In God?

This post is part of a series.  Click on the following links to read Part 1, Part 2, and Part 3.

God is always our refuge, whether we are aware of it or not.  What changes is whether our eyes are on the storms of this life or whether we set our eyes on him and see who He is, what He has done for us on the cross, and what He promises to give us for all of eternity.  The question is not whether or not God is our refuge.  For those of us who have trusted in Jesus as our Savior, God has already promised that He is.  Praise God, that will never change.  The question is whether or not we are taking advantage of it.

So, if God is our refuge, what does it look like to find our refuge in Him?

I have heard it said that we find our refuge from the Lord when we set aside time to get away from our lives and spend time with Him.  But I don't think that's what it looks like.  I don't just find my refuge in the Lord when I am in my closet praying before the sun rises and I step out to face the day on my own.  I find my refuge in the Lord when the three boys and I are at the doctor, no one has eaten lunch, everyone is missing their naps, the boys are all crying, and yet, I am not overwhelmed.  In that moment, God is giving me a peace that surpasses understanding.  In that moment, He is my refuge.  My circumstances have not changed.  He has not removed me from the hardships of life.  But He has answered my cry for help.  He is with me.  And He is protecting my heart from crumbling to a state of being overwhelmed, anxious, and angry at my children.

But God is also my refuge when I don't see it.

He is my refuge when one of my sons receives another heartbreaking diagnosis that leaves me feeling like a failure of a parent.

He is my refuge when I am paralyzed with fear for the life of my husband.

He is my refuge when we are facing two (possibly three) upcoming surgeries, are struggling to find childcare help, and I am faced with the possibility that I will be unable to care for my family for three weeks.

He is my refuge when we add four therapies a week to our already packed schedule.

He is my refuge when I'm weighed down with guilt because I am not faithfully working with my boys each day to reinforce things they work on at therapy.

He is my refuge when I stagger under the weight of my responsibilities.

He is my refuge as I work unceasingly to help Wesley play appropriately rather than stimming.

He is my refuge when I wallow in self-condemnation for all of the times I ignore Wesley's behavior so that I can have a moment of quiet and rest.

He is my refuge when I weep at the affects of disability on our family.

He is my refuge when the words of Psalm 22 echo the cries of my heart.  "My God, my God, why have you forsaken me? Why are you so far from saving me, from the words of my groaning?  O my God, I cry by day, but you do not answer, and by night, but I find no rest."

As I cry out to the Lord with a broken heart, I read the words "In you our fathers trusted; they trusted and you delivered them.  To you they cried and were rescued; in you they trusted and were not put to shame."  It is true.  The Lord is near to the brokenhearted and saves the crushed in spirit.  In that moment, I may not have a tangible sense of God's presence, but I know I have a promise.  As I desperately clutch the promise, I cry out, "But you, O Lord, do not be far off!  O you my help, come quickly to my aid!  Deliver my soul from the sword."  And He will.  He has promised that whatever else may happen, He will deliver my soul.  "For he has not despised or abhorred the affliction of the afflicted, and he has not hidden his face from him, but has heard, when he cried to him."

So, as Psalm 46 instructs us to "Be still, and know that I am God," let us ask the Lord to still our anxious hearts.  Our fretting won't change our circumstances.  It will only leave us tattered and worn.  Instead, let us come to Jesus with our broken and heavy laden hearts and there find rest for our weary souls.  In the midst of the trials that we walk through, let us lay our burdens at His feet and find refuge under His wings.  He will not leave us or forsake us.

God is a refuge for our souls.  He is our very present help in trouble.

God Is A Refuge For Our Souls

This post is part of a series.  Click on the following links to read Part 1 and Part 2.

In Psalm 7:1-2, the psalmist cries out, "O Lord my God, in you do I take refuge; save me from all my pursuers and deliver me, lest like a lion they tear my soul apart, rending it in pieces with none to deliver."

Here we get a picture of what finding our refuge in the Lord looks like.  It does not mean that the storm ceases and we are delivered from all of the trials we are walking through.  It does not mean that a man fighting cancer will not still slowly and agonizingly die, eventually leaving his wife and kids behind.  It does not mean that a family will not still struggle to make ends meet.  It does not mean that a child with disabilities will not still walk through the struggles of this life for all of their days.  What it does mean is that when the storms of this life hit us, which they will, God will be our refuge by saving our souls from being torn apart.  He will deliver our souls from being destroyed by the storm.

If we go back and look at Psalm 46, we see that the psalmist is finding his refuge in God in the midst of present trouble.  The earth is giving way; the mountains are being moved into the heart of the sea; the waters are roaring and foaming; the mountains themselves are trembling.  But yet, in the midst of this, he gives us a picture of what it looks like within the refuge.  The psalmist has found refuge in the city of God, where there is a river whose streams make glad all those who are within the walls.  Because God is in the midst of the city (this refuge), it shall not be moved.  The nations are still raging outside the walls, and kingdoms are tottering.  Nothing has changed.  But within the walls of the city there is peace.  The people of God have found refuge.  There is peace in the souls of the residents of this city, not because their circumstances have changed.  They haven't.  These people have peace because the Lord of hosts is with them.  They have peace because God will help them when morning dawns.  Morning has not yet dawned.  The earth is still crumbling outside the walls of their refuge.  But God has given them peace within their souls as they cling to the promise that someday, after the trials are over, morning will dawn.  And God will help them when morning dawns.

At the end of Psalm 91, it says "Because he holds fast to me in love, I will deliver him; I will protect him, because he knows my name.  When he calls to me, I will answer him; I will be with him in trouble; I will rescue him and honor him.  With long life I will satisfy him and show him my salvation."  So then, the promise of this Psalm is that one day, God will deliver us.  In the here and now, it can seem that finding our refuge in the Lord means nothing, for often our circumstances don't change.  We don't feel that the Lord has heard our cries for help and come to save us.  But if that is the case, then our perspective is wrong.  God's promises aren't just for today.  They are for all eternity.  While we may suffer for a little while here on this earth, one day, God will deliver us.  Because we know Him by name, He will protect our souls from being torn apart.  He will guard us from being destroyed by the fury of the storm.

Here on this earth, when we call to the Lord, He will answer us.  In the midst of our troubles, He is with us.  He will never leave us or forsake us.  And one day, when our lives here on earth are over, He will rescue us, once and for all, from the pains and sorrows and trials of this life, and will honor us forever as His precious children.  While the Lord does not necessarily promise to satisfy us with long life on earth, we will be fully satisfied in Him forever as He ultimately shows us His salvation.

Is God A Refuge From Suffering?

This post is part of a series.  Click on the following link to read Part 1.

The other day I was reading Psalm 91 again, which begins like this:  "He who dwells in the shelter of the Most High will abide in the shadow of the Almighty.  I will say to the Lord, 'My refuge and my fortress, my God in whom I trust.'"  At the risk of sounding heretical, I would say that at first glance, almost every word in the Psalm following this statement appears to be untrue.

It says that "he will deliver you from the snare of the fowler and from the deadly pestilence", but we are not always delivered.  I have not been delivered.

It says that "a thousand may fall at your side, ten thousand at your right hand, but it will not come near you."  But it has come near me.  The pestilence that stalks in darkness has found our family.  The destruction that wastes at noonday is wasting us away.

The psalmist says, "because you have made the Lord your dwelling place - the Most High, who is my refuge - no evil shall be allowed to befall you, no plague come near your tent."  This simply is not true.  Evil does befall those who find their refuge in the Lord, and plagues not only come near their tents, but enter their homes and threaten to destroy their families.

So then, if God's Word is true, what do these verses mean?

Half way through Psalm 91, the psalmist says, "For he will command his angels concerning you, to guard you in all your ways.  On their hands they will bear you up, lest you strike your foot against a stone."  In the beginning of Jesus' ministry, Satan used these very words to tempt Him.  His response should open our eyes to the fact that perhaps we are not understanding the true meaning of the words in this Psalm.  Jesus did not claim these words for Himself, calling thousands of angels to His side to protect Him from harm.  He could have.  Instead, His own life set an example for us of what it truly means to find our refuge in the Lord.

Jesus embraced the path of suffering.  His foot did strike against the stones.  In fact, his whole body was crushed as He was brutally murdered for sins He did not commit.  Even His own Father turned away from Him.

What then did it mean for Jesus to find refuge in God, His Father, as He suffered more than you or I ever will?

Is God Our Refuge?

According to Psalm 46, "God is our refuge and strength, a very present help in trouble."

If this is true, then how do we answer the person who says that the term refuge needs to be more clearly defined, because either they were wrong their entire life about what they thought it meant, or they are an exception to the statement that God has always proven to be a refuge to those who turn to Him?

What does it look like for us to find the Lord to be our refuge even when everything is going wrong despite the fact that we are coming to Him (or at least were going to Him) for help?

What does it even mean that God is our refuge? What does this mean that He is or does for us in the midst of never ending trials where He seems to be showing that He is not good?

These questions have been on my heart lately, and I plan to write more about this topic in the coming weeks.

Questions and Answers

As I mentioned a few weeks ago, Wesley's verbal communication skills are suddenly exploding.  He regularly puts together two word phrases with ease.  This continues to amaze us as we know how difficult it is for him to put together the motor plan for this.  For example, just this week I handed him his baby burp cloth, which he loves to hold while sucking his thumb, and he started jabbering excitedly.  At first I just assumed he was babbling to himself, but eventually it dawned on me that he was talking to me!  I started listening, and he kept patting his burp cloth and saying "yellow burp!".  As soon as I responded with, "Yes, Wesley. That is your yellow burp.  Good job!", he gave me a huge smile and laughed.  He was so proud of himself for telling me this fact.  Likewise, I was proud of him for multiple reasons.  He noticed the color, identified it correctly, and named it verbally.  In addition, he put two words (three syllables) together to tell me what he had observed.  This is no small feat for my boy.

Wesley has also discovered a fun new game, which he calls "Rock Baby".  In an effort to entertain him one difficult evening, I took him in my arms and sang Rock-a-bye Baby, hanging him upside down and tickling him when the baby falls.  This has become a new favorite of his, and he regularly sits next to me, earnestly saying "Rock Baby" with a look of expectation in his eyes.  Whenever the game starts to get old to me (usually after the 10th time in a row singing it), I remember how beautiful the words "Rock Baby" are as they come from his lips, and I laugh with him as I sing it again.

Then a few days ago I had a conversation with my precious son that I never dreamed would be possible for years.  I asked him questions, and he answered them.  He didn't just smile at me in response.  He didn't repeat the last word of my question as he often does.  He didn't wait for my response so that he could imitate it.  He answered my questions with no prompting!  I cannot even begin to articulate how impossible this is for him.  But yet, he did it! God is at work in my little boy, and there is no denying it.  Mountains are moving in this little boy's life.

Our conversation began when I heard Liam screaming and ran into the room to discover Wesley hitting him. I quickly pulled Wesley away from his brother and looked him in the eye, saying "What did Wesley just do to Liam?"  Much to my surprise, Wesley responded, "Hit".  I then shook my head while asking, "Is it kind of Wesley to hit Liam?"  Wesley looked deeply into my eyes and said "no".  Then, fighting back tears of joy, I asked Wesley "What should Wesley say to Liam?"  When Wesley responded by looking toward Liam and saying "Sorry" with a mournful voice, it was almost more than I could believe.  As I drew my son close and hugged him, I was struck with awe as I saw how the Lord is working in his mind and his heart.

Wesley, you are fearfully and wonderfully made, and your heavenly Father is performing wonderful works in you right now.  My soul knows it very well.  I don't know what His plan is for your life.  I don't know how long this amazing burst of growth will continue.  But I do know God has a perfect plan for your life, and He will fulfill his purpose for you.  And along the way, He is using you to show the radiance of His glory to all who are looking.

Friends

One of my greatest joys is watching my two little boys become friends.  Wesley rarely notices other children, and especially children smaller than he is, so I expected things to play out similarly at home.  Much to my surprise, Wesley not only notices his younger brother, but actually even likes him.

At snack time, Liam follows Wesley around the house, hoping he will share.  Usually at some point along the way, Wesley spills his snack and they sit down on the floor to share it together. It warms my heart to watch them smiling at each other as they sit next to one another and shovel snacks into their little mouths as fast as they can.  They must already be learning that the faster you eat, the more you get.

When Wesley wants to play the piano, he does everything in his power to coax Liam over to the piano to play with him.  Then once he's over there, Wesley calls me over to lift Liam onto the bench next to him so that they can sit together.  The boys love to play the piano together and will giggle and laugh as they play.  But Wesley also enjoys watching Liam play the piano and will often just sit next to him and watch him curiously as he bangs away.

I regularly hear Wesley and Liam giggling together in the car as they imitate each other and then crack up at each other's antics.  They have started doing this at home too, and it brings a smile to my face as I watch them following each other around downstairs and laughing together.

Wesley is so patient with Liam when he swoops in to knock over all of the bowling pins Wesley has painstakingly worked to line up on the carpet.  He just looks at him curiously and then joins in on the fun of knocking them over before starting all over again with the work of setting the pins upright.  I am often shocked by the number of things that Wesley permits Liam to do that would infuriate him if anyone else did them.

Of course, they fight together too.  Liam is very interested in Wesley's stacking cups and communication device, and this results in many quarrels between the two of them.  What this really means is that Liam's curiosity often results in his getting cups ripped out of his hands as he is pushed over by his big brother. I often run in to find Liam screaming as Wesley is quickly gathering all of his favorite toys back together.  But even this is a good thing. In giving Wesley a younger brother, God is giving him the opportunity to learn what it means to share and be kind to those around him in a way he would have never learned with just Zach.

As I watch this friendship blossom between my two little boys, I pray that God will continue to bless it.  I pray that they will grow up to always love each other and be close friends.  I pray this for all three of my boys.  May they be a cord of three strands that is not easily broken.

I Love You

Wesley's bus driver smiled at me as I stepped onto the bus, a twinkle in her eyes.

"I have the most exciting thing to tell you", she said.

"After you got off the bus this morning, as you were waving to Wesley, he said 'I love you!'"

My look must have said it all.  Are you sure you really heard him say that?

She smiled as she said, "You know how you say "I love you" to him each morning as you buckle him in?  Well, he said it back."

She's right.  Every morning I say each word to him and he repeats it back to me.  I.  Love.  You.

This morning it all clicked.  As I waved to him, he told me that he loved me.

I only wish I could have heard it with my own ears.

Self-Initiated Play

There are many wonderful things about this picture of Wesley, as several blog readers pointed out.  It is amazing that he is ignoring the stacking cups (his favorite toy) on the floor.  As well, he is naming out loud the color of each fish that he is going to catch before he catches it.

Did you catch that?  He is naming out loud the color of each fish that he is going to catch before he catches it!  That, my friends, is something I never would have guessed he could have done at the age of three and a half.

Even more than that, he not only caught each fish, but he also put them all back in afterward.  That is an even more difficult task to complete, since it requires detailed fine motor work along with matching puzzle piece shapes with no matching pictures on the puzzle board.  The fact that he completed this puzzle without getting distracted and moving on to something else is pretty amazing.

But what is most special to me about this picture is that Wesley initiated doing this activity. We have been working for years to help Wesley learn how to play by himself.  Because he struggles so much with sensory integration problems, unless we are actively playing with him, he is usually seeking sensory stimulation of some kind.  My job as a mom is to do my best to keep up with my other responsibilities along with facilitating play with him as much as possible.  Usually when I leave Wesley's side to attend to a brother, I come back to find he has run off to do a more preferred (and probably sensory related) activity.  So you can imagine my shock when, after pulling down this puzzle and then going to help Liam, I came back to find the puzzle nearly completed.

While I knew that Wesley could play with this puzzle when prompted and kept on task, it was a joy to me to find him enjoying this game of his own volition.