A Long (and long-awaited) Update

Six months have flown by since my last update on Wesley's developmental progress, so I thoght I'd take a minute to stop and reflect on all that the Lord is doing in his life.

Wesley has been blessed with a fantastic team at school.  God has truly given his teacher a gift.  She manages a classroom of children with special needs with extraordinary skill and customizes her teaching to each individual child.  She is also backed up by a wonderful team of therapists and teaching assistants.  We are so thankful that the Lord has provided Wesley with such a good learning environment that so perfectly fits his needs.

Just in the past two months, since school started back up for the fall, we've seen Wesley grow by leaps and bounds.

He can now walk safely up and down a flight of stairs just holding the rail.  In fact, this week I watched him walk up a flight of stairs with alternating steps.  As well, he can walk up about six steps and down two without holding onto anything.  He is much safer at playgrounds as well.  I find myself not hovering six inches away from him to protect him from obliviously walking off an opening eight feet up and crashing to the ground.  Instead, I can step back and watch as he explores and goes down the slides himself.

Fine motor skills are not one of Wesley's strengths, but we have seen improvements here as well.  He can now string beads on a string, imitate drawing horizontal and vertical lines, and he is beginning to imitate drawing circles.  He loves to stack duplo blocks to create large towers and patiently works to set up his bowling pins so he can knock them down.  Wesley also does a great job of eating with a spoon and is slowly improving with his fork eating.  (At this point, fingers are way easier than forks, so we are having to push through that a bit.)

Jumping on the cushions...a favorite pastime!

On the other hand, in the last few months we have watched Wesley take several large steps backward with regard to sensory issues.  While he had mostly stopped licking things at the start of the school year, after several illnesses he's back into wanting to lick and spin everything all the time.  So we are working to help him find other ways to explore his environment, but this has been an uphill battle.

One thing we often try to do with Wesley when he's struggling to regulate his body sensorywise is read books.  We received an an amazing home-made book from Courtney at Pudge & Biggs, which we've used to teach Wesley how to count to five.  (If anyone creative ever wants a suggestion for what to give Wesley, more books like this to work on other things we're trying to teach him would be a godsend!)  As well, we pull out his magnadoodle and write letters for him to identify.  He currently knows all of his capital letters except for W.  Poor kid has crazy parents who gave him a first name that starts with the most difficult letter to say in the entire alphabet.  Someone should have told them not to make things so hard on their son!

Pinning big brother!  Such fun!

At the recommendation of Wesley's occupational therapist at Easter Seals, we switched his communication device to accommodate a 32 picture screen rather than it's previous 15 picture screen.  I think all of us have been a bit shocked at how quickly Wesley learned to maneuver through his new device.  That kid knows where every picture is and how it is categorized.  It is a reminder to us of just how much he knows and understands.

The update of his communication device has also sparked an explosion of words.  Wesley regularly sits at his device, pushes buttons, and then repeats the words.  As a result, Wesley now has about 50 words* that he uses on a consistent basis.  He is beginning to use more and more of these words independently without being cued to speak, which is a huge step for him.  His verbal motor plan is starting to come together.  As well, he has started to string two words together.  This is still very difficult for him, but the other day Daddy was very proud of his defiance when he was instructed to go one way and instead pointed the opposite direction and said, "No, that!"

Sometimes it is hard to keep your little brother away from your communication device!

Wesley now answers yes and no questions, which is something we have been working on for over a year now.  What a joy it is to ask him if he wants something and get a clear answer rather than having to guess.

As well, Wesley now initiates playing games more often than he used to.  Just in the last week, he has pulled out a puzzle to put together, pulled out his bowling pins and asked me to set them up, asked me to get his sword so he could run around swinging it and yelling "yah, yah!" in the back yard, and brought his counting book to me for us to read together.

Caught in the act of sharing a snack with baby brother!

We are so proud of our precious son.  Learning is an uphill battle for him, but he keeps at it, and every milestone met is a huge accomplishment for him.  And what a joy it is to look back over six months and see how far he has come.

* Wesley's words:  Mommy, Daddy, Zach (gak), baby, Liam (mum), yes (ess), no, more, up, off, in, open (ohpuh), juice (guih), teddy graham (teddy mahm), cracker, sauce, eat, snack  (nagh), this (dis), that (dat), all done (ah dee), car, go, on, ball, ball popper (bah pah), coke, I, want, poopy, one, two (koo), three (pee), four, five, help (pep), clap (pup), night night (nah nah), burp (bup), toy (gee), cake, milk (muh), bowling (buh buh), gears, play, hi, bye, Wes.

I'll protect you Mom!  Yah!  Yah!